Blank Overlay Used To Show Alert Messages Automatically

You are about to leave bloomssyndromeassociation.com.

Click Cancel to return or OK to continue.

News Spotlight   |   Print Page   |   Contact Us   |   Sign In   |   Register
ASK THE REGISTRY
Share |

The Bloom's Syndrome Association is pleased to partner with the Bloom's Syndrome Registry to present a program called Ask the Registry. This program provides a practical means for members of the Association to ask a variety of questions about Bloom's syndrome and Bloom's syndrome research and receive authoritative answers from the Bloom's Syndrome Registry. The program is available in two formats:

  1. As Sharable Content: where a running history of all questions and answers will be maintained online. Questions may be edited for clarity or consolidated and will be presented anonymously. Additionally, this program will help the BSA develop for future publication a comprehensive handbook for families, physicians, and educators regarding the medical, scientific, personal, and legal aspects of Bloom’s syndrome.
  2. In Confidence: where the Registry responds directly and exclusively to the submitter via email.

Notes: Must be a member of the Bloom's Syndrome Association to participate. The Registry will attempt to answer as many questions as possible on a schedule TBD. The Registry will not address questions seeking any personal advice (medical or otherwise) and, along with the BSA, assumes no liability for the accuracy or individual interpretation of any information or opinions it provides. See, also, disclaimers.

BSA Blog

2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

2017 Bianco Family's Fundraiser

Third annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2017 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2017 Bianco Family's Fundraiser.

About the BSA | Contact the BSA | Privacy Policy | Terms of Service | Disclaimers

Copyright Bloom's Syndrome Association, Inc.