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To accommodate for a lack of practical and otherwise accessible information about Bloom’s syndrome, the BSA plans to host conferences and seminars regarding the everyday realities and long-term considerations of living with or raising a child with Bloom's syndrome. Professional speakers will include members of the medical and scientific research community, healthcare providers, educators, legal experts, medical rights advocates, representatives from compatible organizations, motivational speakers, human and social service providers, philanthropists, and fundraising strategists, among others. Additionally, members of the BSA community, especially those directly affected by Bloom's syndrome, will be invited to share with others, as presenters, their unique knowledge, perspectives, and experiences.

All of the Association’s conferences and seminars will be open to the public. The BSA may sponsor these events alone or in combination with other charitable organizations. The BSA will make reasonable efforts to accommodate participants in need of language translation or specialized diets. The Association may charge participants a modest registration fee to recover its costs.

See, also, Family Scholarship Program.

BSA Blog

2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

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