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A major, ongoing activity of the BSA will be raising funds for Bloom’s syndrome research, both immediate and long-term. Online donations will be accepted, acknowledged, and receipted via the BSA website. The Association will apply for educational and research grants from corporations, foundations, and government agencies. Additionally, the Association will seek charitable donations from corporations that provide or might otherwise develop products and services relevant to those affected by Bloom’s syndrome. The Association may also seek funding (via email, paper mail, or personal contact) from individuals and smaller organizations with philanthropic interests compatible with or sympathetic to its mission.

For long-term funding of scientific research, an endowment fund has been established. The Association plans to raise funds to build an endowment that will sustain indefinitely, through annual interest income, effective levels of research funding until a breakthrough therapy for Bloom's syndrome is found. While the majority of funds raised by the Association will be used to grow its endowment, all donations designated for current scientific research will be pooled and distributed as grants to sponsoring organizations for their direct funding of Bloom's syndrome-related research.

See, also, Endowment Project and Grants Program.

Notes: The BSA is registered with the Office of the New Hampshire Attorney General and is duly authorized to solicit funds as a charitable nonprofit organization in the State of New Hampshire. The BSA is not currently registered to solicit funds in any state other than New Hampshire. BSA staff and volunteers will conduct all fundraising activities; the BSA will not utilize the services of any paid fundraisers.

BSA Blog

2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

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