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The Bloom's Syndrome Association was founded in 2012 to relieve the isolation of those affected by Bloom's syndrome; to better inform medical and scientific researchers about the everyday realities of living with or raising a child with Bloom's syndrome; to provide practical information for parents, teachers, and healthcare professionals; and to complement the services of the Bloom's Syndrome Foundation, the Bloom Syndrome Foundation (Europe), the Bloom's Syndrome Registry, and Bloom's Connect: a social-networking, rights-advocacy organization for persons with Bloom's syndrome and their support systems.

The BSA website was conceived as a locus for news, events, issues, answers, and discourse about Bloom's syndrome. Members are invited to share their profiles and contact information in confidence with other members. Resource links include medical and scientific organizations, government agencies, advocacy groups, related organizations, manufacturers and sellers of assistive technologies, and professional contacts. A BSA newsletter is planned. Donations to the BSA may be made online or through the mail.

 
"... by stopping and looking for a moment at these most rare and seeming unique conditions,
we might yet be surprised at the ubiquity of what they teach us."
 
Brian C. Campbell, M.D., Ph.D., in summation of the Bradshawe Lecture on Some Rare and New Diseases,
delivered by James Piaget [1882]
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BSA Blog

2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

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