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WIKI PROJECT (Planned)
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The BSA plans to create and maintain on its website a wiki (set of collaborative pages) to compile practical information to address the everyday questions and challenges of families affected by Bloom's syndrome. This information will be accessible online in progressive-draft form and later amended and published as part of a handbook for families, physicians, and educators. All members of the Association will be invited to submit and critique content for review in developing this resource.

See, also, Ask the Registry.

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BSA Blog

2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

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