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Update on RECQ2018

Posted By Paul Zaslaw, Saturday, August 26, 2017

For patients and families who may be considering attending this international conference, RECQ2018 will have greater emphasis than RECQ2016 on the mechanisms of aging observed in the progeroid syndromes (which traditionally include Bloom’s syndrome), with less general attention on Bloom’s syndrome. To some measure, RECQ2018 is intended to bring balance to the investigation of the RecQ and progeroid syndromes not covered in depth at RECQ2016 (i.e., Werner syndrome, Hutchinson-Gilford progeria, xeroderma pigmentosum, and Cockayne syndrome). While patients and families are ultimately welcome to attend this meeting, the substance will be technical and no funding for P&F travel assistance is anticipated.

However… more patient- and family-centered educational opportunities for the Bloom’s syndrome community are coming, including a Bloom’s syndrome conference in New York (w/name, date, and exact location TBD) and RECQ2019 (reprising the integrated format of RECQ2016, w/date and mid-continental USA location TBD). More information about each of these events will be posted on the BSA website and elsewhere as details emerge.

Tags:  conference  meeting 

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2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

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