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RESEARCH FUND Details » Donate Online

The Bloom’s Syndrome Foundation, a 501(c)(3) charitable organization founded in 2004, exists exclusively to raise and grant funds for current Bloom’s syndrome research. The Foundation's stated mission is " fund research aiming at the development of a therapy for Bloom's Syndrome and the prevention of its complications, primarily the significant risk of developing cancers at early ages." A scientific advisory board is responsible for reviewing and approving the Foundation’s grant proposals.

While the Bloom’s Syndrome Association has a broader mission than the Bloom’s Syndrome Foundation, their relationship is mutually supportive. To complement the mission of the Foundation, the emphases of the Association’s activities will be on education, advocacy, and building an endowment to ensure long-term funding for Bloom’s syndrome research.

It is anticipated that any funds received by the Association and designated by the donor for current scientific research would aptly serve the mission of the Bloom’s Syndrome Foundation. However, in estimation of the research that may exist beyond the purview of the Foundation, the Association will also welcome grant proposals from other public charities to advance their purposes in funding Bloom’s syndrome-related research.

A committee designated by the Board of Directors will review all grant proposals. Over time, the Association may establish its own faculty-based, scientific advisory board to directly fund meritorious proposals for Bloom’s syndrome research, whether basic, clinical, translational, psychosocial, behavioral, epidemiological or otherwise defined.

BSA Blog

2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

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