SPECIAL THANKS

The founders are especially grateful to the following individuals and organizations for their selfless contributions toward the realization of the Bloom Syndrome Association and its website:

  • Jacqueline A. Henson, Esq., Principal, Ober|Kaler, Washington, D.C., for her pro bono, legal guidance in chartering the BSA as a nonprofit, charitable organization in the State of New Hampshire and reviewing several drafts of the Association’s detailed Application for Recognition of Exemption Under Section 501(c)(3) of the Internal Revenue Code.
  • Nathan A. Ellis, Ph.D., Associate Professor, Department of Cellular and Molecular Medicine, University of Arizona, and BSA board member, for his humanitarianism; ongoing academic support; substantive contributions; accessibility, approachability, patience, enthusiasm, and encouragement.
  • Bloom’s Syndrome Foundation, or, personally, Richard N. Gladstein; BSF co-founder and president and BSA board member, as a mentor, and for his activism, boldness, candor, and willingness to help in any way possible, including a generous grant from the Foundation to the Association to advance construction of its website.
  • Aimee Zaslaw of JazDesign and Ed Murphy of CyberPrompt, for their collaborative contributions to the graphic design and functional development of the original BSA website and their continuing donation of professional services to the benefit of the Association.
  • Anonymous Donor, for a generous gift to cover outstanding expenses for transitioning the original BSA website to a vendor-based, membership management software solution.
  • Anonymous Donor, for a generous gift to cover the majority of operating expenses for the Association's 2014 fiscal year.

Note: initial funding for the design and development of the BSA website was provided by a grant in 2009 from Johnson & Johnson Consumer Companies, Inc.

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