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FOUNDERS

The Bloom's Syndrome Association was founded in 2012 by Paul and Susan Zaslaw of Hanover, NH. The Zaslaws have two children, Max and Lindsay, among Susan's full brood (including Ryan, Christopher, and Brendan). Lindsay, the youngest and only daughter, was born in 2004 and diagnosed with Bloom's syndrome prior to her first birthday. Since then, Paul and Susan have strived to become parent-experts on Bloom’s syndrome and remain staunch advocates for Lindsay's present and future wellbeing.

In 2008, the Zaslaws participated in concurrent conferences in Chicago: Molecular and Clinical Mechanisms in Bloom's Syndrome and Related Disorders and The Bloom's Connection: Unraveling The Mystery. These crosstown conferences, scientific and lay respectively, provided a first-ever opportunity for families to interact en masse with medical investigators in common sessions and social gatherings. The experience was educating and inspiring, and sparked optimism for the future of Bloom’s syndrome research. When the conferences ended, many wanted to ensure that the synergies from Chicago would be sustained, that collaboration between Bloom’s syndrome families and researchers would continue in earnest.

By 2009, the Zaslaws had met or corresponded with several families affected by Bloom’s syndrome and established strong bonds with several key researchers. While lots of good work to support families was happening via Bloom’s Connect, something more was needed to connect families to the scientific research community, to invigorate fundraising for Bloom’s syndrome research, and to broaden public awareness of Bloom’s syndrome and its integral relationship to cancer research.

Finally, in 2014, after grappling with all the legal and technical issues, government forms, recruiting needs, operational expenses, and domestic challenges, the Zaslaws launched the website of the Bloom’s Syndrome Association, introducing the nonprofit, family-support organization and its mission to the international Bloom’s syndrome community.

Note: Paul and Susan are especially grateful to Nathan Ellis, PhD, (faculty advisor, BSA board member, and friend) whose enduring support, objective and knowledgeable counsel, and substantial contributions made the realization of this organization possible.

BSA Blog

2016 Bianco Family's Fundraiser

Second annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2016 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2016 Bianco Family's Fundraiser.

2017 Bianco Family's Fundraiser

Third annual fundraiser in memory of Vanessa Bianco and for the benefit of all individuals and families affected by Bloom’s syndrome. All proceeds from the 2017 campaign will go to Bloom’s Syndrome Association in support of its mission.

For more information and to make a donation, please visit the CrowdRise webpage for the 2017 Bianco Family's Fundraiser.

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